The national registry of congenital bleeding disorders is supervised by the specialist doctors from the Italian Association of Hemophilia Centres and the Istituto Superiore di Sanità.

It is supported by Fondazione Paracelso, which also contributes funding.

Every six months it publishes a report containing an analysis of the data received from the more than 50 Centres active in Italy.

For more information you can go to the AICE web site and consult the scientific publications there.